Our Mission
Our Mission
At The Elaine Symone Foundation, our mission is simple and unwavering:
to improve NICU experiences and outcomes for all families by providing compassionate support, essential resources, and guidance during some of life’s most challenging moments.
Every family deserves to feel seen, supported, and empowered, no matter who they are, where they come from, or what challenges they face.
Our Commitment to Equity & Inclusion
While we proudly serve all families, we also recognize a deeply important truth:
families of color often experience additional barriers, inequities, and disparities in NICU care.
We do not ignore this reality, we seek to change it.
Our work is rooted in compassion for every parent, and in the belief that equity is not about excluding one group to uplift another. It is about ensuring every family receives the dignified care and support they deserve.
Why This Matters: Understanding NICU Disparities
Research shows that due to systemic inequities, families of color, particularly Black families, are disproportionately affected by gaps in maternal and neonatal care.
Here’s what the data tells us:
Differences in Care & Outcomes
Babies born to women of color often receive lower-quality NICU care compared with white newborns.
Preterm infant mortality rates tend to be higher in “minority-serving” NICUs.
Life-saving interventions, like surfactant therapy for premature babies with underdeveloped lungs, are sometimes less consistently administered to Black infants.
Differences in Support
Families of color report lower NICU satisfaction and fewer opportunities for bonding practices like kangaroo care (skin-to-skin contact).
Studies show Black mothers are less likely to be breastfeeding at discharge, often due to limited education, encouragement, and lactation support.
Differences in Experience
Many parents of color describe feeling unheard, dismissed, or overlooked during their NICU journey.
Emotional strain can be intensified when families are balancing cultural, financial, or systemic barriers alongside the stress of caring for a medically fragile newborn.
These disparities are preventable, and together, we can help change the narrative.
Our Vision: A NICU Experience Where Every Family Thrives
We believe in a world where:
Every baby receives high-quality, evidence-based, equitable care
Every family feels supported, respected, and informed
Parents are empowered to show up as advocates for their child
Communities come together to lift up families facing hardship
Disparities shrink because awareness, compassion, and support grow
We serve all families, because every family matters.
But we also intentionally show up for those who face the greatest barriers because equity requires action.
How We Live Out This Mission
Through our programs, partnerships, and support efforts, we walk beside families in the NICU and beyond by offering:
Emotional and spiritual encouragement
Financial assistance for essential needs
Care packages and in-kind donations
Education, advocacy, and resources
Support for families facing hardship outside the NICU
Partnerships with hospitals and community organizations
Awareness-building around disparities in neonatal care
We are here to lighten the load, strengthen families, and ensure that no parent feels alone, not in the NICU, not after discharge, and not during seasons of crisis.
One Family at a Time: One Step Toward Change
Every act of support, a warm meal, a gas card, a listening ear, a prayer, or a donated holiday gift, makes a real difference.
Change happens one family at a time, and your support helps us make that difference possible.
Together, we are creating a more compassionate, equitable NICU experience for every family.